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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."

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International Scientific, Medical & Family Conference

The Barth Syndrome Foundation's (BSF) biennial conferences bring affected families, research scientists, and clinicians together in one place at one time for a dual track meeting.  

Doctors who might care for a single patient will have the opportunity to see well over 50 individuals with Barth syndrome at once; thereby, gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also hear from scientific experts about the latest discoveries and upcoming potential treatment options.

Scientists will hear presentations on colleagues' recent work as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory. 

Families and individuals with Barth syndrome have a unique opportunity to be seen by the world's greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history, and even their own tissue in addition to learning from experts and from each other so that they can better advocate for themselves or their child(ren).

 

The 2020 conference will take place at the Hilton Clearwater Beach in Clearwater Beach, Florida, USA; July 20-26,2020. 

Registration is now open, so please follow this link to keep up-to-date on information regarding the conference including how to register and secure your hotel room at the discounted rate (when applicable). 

 If you would like to take a look at previous conference brochures, click here

Click the following link to view the Scientific & Medical Presentations from previous conferences. 

2018 

2016 

2014 

2012 

2010 


Privacy and Disclaimer

Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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