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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."

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In 2002 a small group of dedicated volunteers founded the Barth Syndrome Foundation of Canada after having had contact with the then recently established Barth Syndrome Foundation, Inc. (USA). Barth Syndrome Foundation of Canada is an affiliate of Barth Syndrome Foundation, Inc.

Our two major focuses are to provide hope for the future through funding research grants into the cause, treatments and a cure for the disease, and hope for today through our services and programs that assist both Canadian families and physicians.

Privacy and Disclaimer

Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

Registered Charity Number:
86102 2002 RR0001

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